Gandee Family CP Swagger Comes to MSU and the state capitol

After six days and 111 miles Hunter and Braden Gandee completed their last Cerebral Palsy Swagger walk on the steps of the state capitol in Lansing, Michigan. 

For more information, please follow the Gandee Family on Facebook at The Cerebral Palsy Swagger or from the USA Today story about the completion of their walk.

Michigan State University Adaptive Sports & Recreation Club

The MSU Adaptive Sports & Recreation Club seeks to:  ‣ promote the health, social, and psychological benefits of physical activity to individuals with physical disabilities establish a space where athletes with physical disabilities and able-bodied volunteers can come together to create an integrated community of peers that serves to eradicate negative stereotypes about disability by highlighting the abilities of individuals with physical disabilities.  Learn More

The Communication Function Classification System (CFCS)

The Communication Function Classification System (CFCS) is a new method to quickly describe communication ability in individuals with cerebral palsy and other conditions. CFCS was developed by Mary Jo Cooley Hidecker, a former MSU CPON team member, and colleagues. CPON's research team contributed to her newly published study on how communication, gross motor and fine motor disabilities may cluster together in children with cerebral palsy. See the abstract below for more information.

Dev Med Child Neurol. 2012 Aug;54(8):737-742 . Epub 2012 Jun 20.

Inter-relationships of functional status in cerebral palsy: analyzing gross motor function, manual ability, and communication function classification systems in children.

Hidecker MJ, Ho NT, Dodge N, Hurvitz EA, Slaughter J, Workinger MS, Kent RD, Rosenbaum P, Lenski M, Messaros BM, Vanderbeek SB, Deroos S, Paneth N.

Source:  Department of Speech-Language Pathology, University of Central Arkansas, Conway, AR; Department of Epidemiology, Michigan State University, East Lansing, MI; Department of Neurodevelopmental Pediatrics, Helen DeVos Children's Hospital, Grand Rapids, MI; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI; Marshfield Clinic Research Foundation, Marshfield, WI; Waisman Center, University of Wisconsin-Madison, Madison, WI, USA. CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada. Department of Biomedical Research and Informatics Core, Michigan State University, East Lansing, MI; Department of Neurology, Helen DeVos Children's Hospital, Grand Rapids, MI, USA.

Abstract:  Aim To investigate the relationships among the Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), and Communication Function Classification System (CFCS) in children with cerebral palsy (CP). Method Using questionnaires describing each scale, mothers reported GMFCS, MACS, and CFCS levels in 222 children with CP aged from 2 to17 years (94 females, 128 males; mean age 8y, SD 4). Children were referred from pediatric developmental/behavioral, physiatry, and child neurology clinics, in the USA, for a case-control study of the etiology of CP. Pairwise relationships among the three systems were assessed using Spearman's correlation coefficients (r(s) ), stratifying by age and CP topographical classifications. Results Correlations among the three functional assessments were strong or moderate. GMFCS levels were highly correlated with MACS levels (r(s) =0.69) and somewhat less so with CFCS levels (r(s) =0.47). MACS and CFCS were also moderately correlated (r(s) =0.54). However, many combinations of functionality were found. Of the 125 possible combinations of the three five-point systems, 62 were found in these data. Interpretation Use of all three classification systems provides a more comprehensive picture of the child's function in daily life than use of any one alone. This resulting functional profile can inform both clinical and research purposes. 

   Podcast Available on iTunes

Developmental Medicine and Child Neurology podcast about the Development of the Communication Function Classification System (CFCS) for individuals with cerebral palsy podcast.

Cerebral Palsy project focuses on kids and adults | MSU program seeks participants, sets up a support network    Lansing State Journal Article

Dr Nigel Paneth, director of the CPON project, received the "Weinstein-Goldenson Medical Science Award" in recognition of his work on cerebral palsy. The award was presented at the United Cerebral Palsy (UCP) annual conference in Little Rock, Arkansas.

UCP Research and Educational Foundation notes on their website that "The Weinstein-Goldenson Award is presented annually to a clinician- scientist for outstanding contributions in medical research which enhance the lives of persons with cerebral palsy and their families."

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